News

Proof-of-Concept Results Show Jaguar Health’s Crofelemer Reduced Total Parenteral Nutrition in Third Intestinal Failure Orphan Disease Patient
As recently announced, initial proof-of-concept results from this ongoing investigator-initiated trial (IIT) show crofelemer ...
I won the ‘orphan lottery’ in Russia and Canada transformed my life: ‘If you hadn’t been adopted, you’d be on the streets. Or dead.'
My story began at Baby House No. 1 in Novosibirsk, Russia, one of thousands of children left behind in the wake of the Soviet ...
Texas increases well plugging budget as backlog of orphan sites grows
The Railroad Commission’s program for sealing orphan oil and gas wells will get an additional $100 million over the next two ...
WOUB Public Media12h
Orphan wells pose a threat to groundwater in Ohio
Scientists recently released research showing where groundwater is most at risk of contamination by orphan wells.
Parliamentarian reverses course on rare disease drug price provision in tax bill
The Senate Parliamentarian reversed course on a small provision in the One Big Beautiful Bill Act that could boost cures for rare diseases.
‘If you hadn’t been adopted, you’d be on the streets. Or dead': I won the ‘orphan lottery’ in Russia and Canada transformed my life
My story began at Baby House No. 1 in Novosibirsk, Russia, one of thousands of children left behind in the wake of the Soviet ...
The Statehouse News Bureau18h
Orphan wells pose threat to groundwater in Ohio
The Appalachian Basin – which includes parts of eastern Ohio – is one of the areas where aquifers are most at risk.
Fierce Pharma13h
Orphan Cures Act re-added to Trump tax bill as Senate prepares to begin vote-a-rama
The Orphan Cures Act has been added back into the Senate version of President Donald Trump’s “big, beautiful bill” after being ...
Sanofi: Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy
Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy Two phase 3 studies are currently underway testing riliprubart in people with CIDP as ...
Records stay public in case of released suspect now accused of killing woman
Allegheny County’s President Judge on Monday did not respond kindly to the public defender’s request to seal court records in ...
US brings charges in North Korean remote worker scheme that officials say funds weapons program
The Justice Department has announced criminal charges in connection with a scheme by North Korea to fund its weapons program ...
The Manila Times22h
Press Release: Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy
Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy. Two phase 3 studies are currently underway testing riliprubart in peopl ...