News

Proof-of-Concept Results Show Jaguar Health’s Crofelemer Reduced Total Parenteral Nutrition in Third Intestinal Failure Orphan Disease Patient
As recently announced, initial proof-of-concept results from this ongoing investigator-initiated trial (IIT) show crofelemer ...
I won the ‘orphan lottery’ in Russia and Canada transformed my life: ‘If you hadn’t been adopted, you’d be on the streets. Or dead.'
My story began at Baby House No. 1 in Novosibirsk, Russia, one of thousands of children left behind in the wake of the Soviet ...
Texas increases well plugging budget as backlog of orphan sites grows
The Railroad Commission’s program for sealing orphan oil and gas wells will get an additional $100 million over the next two ...
WOUB Public Media12h
Orphan wells pose a threat to groundwater in Ohio
Scientists recently released research showing where groundwater is most at risk of contamination by orphan wells.
Parliamentarian reverses course on rare disease drug price provision in tax bill
The Senate Parliamentarian reversed course on a small provision in the One Big Beautiful Bill Act that could boost cures for rare diseases.
‘If you hadn’t been adopted, you’d be on the streets. Or dead': I won the ‘orphan lottery’ in Russia and Canada transformed my life
My story began at Baby House No. 1 in Novosibirsk, Russia, one of thousands of children left behind in the wake of the Soviet ...
The Statehouse News Bureau18h
Orphan wells pose threat to groundwater in Ohio
The Appalachian Basin – which includes parts of eastern Ohio – is one of the areas where aquifers are most at risk.
Fierce Pharma13h
Orphan Cures Act re-added to Trump tax bill as Senate prepares to begin vote-a-rama
The Orphan Cures Act has been added back into the Senate version of President Donald Trump’s “big, beautiful bill” after being ...
The Post3d
Organizations work to plug orphan wells in Southeast Ohio
Southeast Ohio’s history of coal mining has left the region with many environmental dangers. The Ohio Department of Natural ...
Inside Climate News5d
Texas Legislature Increases Well Plugging Budget as Backlog Grows
The Railroad Commission’s program for sealing orphan oil and gas wells will get an additional $100 million over the next two ...
Senate rulekeeper deals blows to revised ‘big, beautiful bill’
“We have been successful in removing parts of this bill that hurt families and workers, but the process is not over, and ...
Sanofi: Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy
Riliprubart granted orphan drug designation in Japan for chronic inflammatory demyelinating polyneuropathy Two phase 3 studies are currently underway testing riliprubart in people with CIDP as ...